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Spina Bifida Online Research Study

Do you have a child (ages 10 – 29) with Spina Bifida? If so, researchers from Kennedy Krieger Institute invite you to participate in an online research study! We are interested in learning more about how and when children with Spina Bifida learn to manage their medical self-care and home responsibilities. The study does not require a clinic visit and can be completed using a computer in your home or elsewhere. The online survey usually takes about 15-20 minutes to complete and is anonymous, so no personal information such as names, social security numbers, or IP (computer) addresses will be collected. Please be aware that if your child is over the age of 18, we will ask you to obtain your child’s consent. If you have questions about this study, Dr. Zabel can be reached at zabela@kennedykrieger.org

If you are interested in participating in this study, we invite you to go to www.psychdata.com and enter survey # 128186. We thank you very much for being willing to help us and other individuals with Spina Bifida by participating in this study!